Anyone who suffers from auto immune disease knows what a huge bonus it is to be able to decorate for the Holidays. To have the pain controlled, and an energy surplus (Spoons!), is such a joy. I did this 2 weeks after my initial treatment. The A.S.S. effects were behind me, thankfully! In my last post , I promised that my next post would be about the A.S.S. effects of my loading dose of steriods to treat my LEMS disease . I thought I would get to it sooner than now; but one of those great side effects was to not be able to concentrate very well. My library books and the novel I am into now laid unopened; and the blog sat in cyber space with just two posts. Well, fortunately, or unfortunately for you, I can concentrate again! When my neurologist, Dr. Roople Unia, told me what the on-boarding dose and maintenance dose would be, I groaned and yet I had no idea what I was in for. When you hear of steroid treatments you think of weight gain, "moon face", an...
This is what LEMS looks like. This recliner, heating pad, pillows and low light have been my refuge, for the last 4 years. My first blog post was about the pain I've been experiencing for most of my life. The pain was not just from my severe scoliosis diagnosed and operated on as a child; but also from my body attacking itself, leading to multiple diagnosis' of auto immune diseases. The reactions and comments I have received from friends and strangers who have read it have been heart felt and heart warming. It is exceedingly difficult to open up about things that make you stand out from the rest, especially when your life has always stood out from the rest (and not only because I am close to 6' tall!) A blog can be entertaining, informative, thought provoking and sometimes something that people stop reading in the first paragraph. This post is going to be the first of many that will be quite serious. I do plan on sharing funny stories through my journey, however, as...